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#chronicillnesses

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Today is international #LongCovid Awareness Day

Check this canadian interview with a Mount Sinai (NY) chronic disease specialist. Up to one in five people with COVID-19 develop LONG COVID, meaning three months after having the disease they still do not recover their full abilities.

The specialist affirms that each reinfection, even moderate, of COVID-19 subtracts between 2-6% of IQ.

LONG COVID is a disease that causes systemic damage, especially to the immune system, causing T-cell exhaustion and triggering latent diseases or exposing the body to new pathogens from which it would have been able to defend itself before. Worth a listen:

cbc.ca/player/play/audio/9.668

#CovidLong #COVID19 #CovidIsNotOver #COVIDisAirborne
#CovidIsntOver
#ImmuneSystem #ImmuneDysfunction
#autoimmune #TCell
#chronicillness
#ChronicIllnesses

🧵
"Chronic diseases misdiagnosed as psychosomatic can lead to long term damage to physical & mental wellbeing, study finds"

eurekalert.org/news-releases/1

Research on people with autoimmune diseases but people with other conditions will sadly be able to relate

@chronicillness
@spoonies
#neisvoid
#chronicillness
#chroniclife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@lupus @mecfs
@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #MEcfs #CFS #PwME
1/

Continued thread

5/

Table 1. Never-words, their impact, and suggested alternatives

from

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

mdpi.com/1660-4601/22/2/275

#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

@mecfs @longcovid @chronicillness @spoonies

Continued thread

2/

Table 1. Never-words, their impact, and suggested alternatives

from

Language Matters: What Not to Say to Patients with Long COVID, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and Other Complex Chronic Disorders

mdpi.com/1660-4601/22/2/275

#LongCovid #MEcfs @mecfs @longcovid @chronicillness
@spoonies
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie

🌟 Introduction Post 🌟

Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

🧑‍💻 Who I Am

I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

🐾 Meet Squeaker!

I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

📚 What I’m Studying

I'm currently learning:

  • Digital Accessibility through the BIT Accessibility Analyst Course
  • Literary Braille Proofreading via the NLS
  • Programming on platforms like freeCodeCamp and Codecademy

My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

💡 What I Do

I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

  • Facebook: Multiple Disabilities Peer to Peer Support Group
  • Discord/Mailing List: MultAbilities
  • Clubhouse: People with Multiple Disabilities

Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

🎮📖🍴 My Interests

When I’m not advocating or studying, you can find me:

I also love swimming 🏊‍♀️ when my health allows it.

🛠️ My Goals

One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

  • Provide peer support groups
  • Help fund assistive technology
  • Advocate for education and employment opportunities
  • Collaborate with disability-focused organizations to improve accessibility

For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

🤝 Let’s Connect!

I’m always happy to chat about:

  • Accessibility in #tech or tech in general
  • Disability advocacy
  • Programming (#HTML, #JavaScript)
  • Braille
  • Books
  • Or just life in general!

Feel free to follow me here or check out my website at laniecarmelo.tech.

freecodecamp.orgfreeCodeCamp.orgLearn to Code — For Free
Continued thread

Fellow asthma non-enjoyers:
Pls carry your inhaler. Please USE your inhaler.
PLEASE wear an FFP3 respirator, ideally reusable with filters.

Please GO TO A&E / CALL AN AMBULANCE if your reliever / rescue inhaler does not resolve your symptoms.

You WILL die one day.
You can postpone that day (and some disablement until then) with prompt action.

(Also, SEE YOUR GP after breathlessness or symptoms that are severe even to make you consider a hospital visit.
Your respiratory / chronic disease nurse needs to know.
You may benefit from a course of short-term steroids.)

youtube.com/watch?v=CyJwCTgK-j

Hai, if youre seeing this, plz tap buttons so I know youre there :) im new & seeking friends, heres a lil #intro abt me

- I joined Mastodon when my partner & I started(? Launched? Installed?? Built??) our own instance (server??? Lol, still learning!) a few days ago

- i use many kinds of #art & #crafting as my #therapy

- i have #chronicillnesses that slow me down a lot

- i love adventure, learning, & building community

- more things i like: #legwarmers #lemonade #lavender #collecting #beach