Having a rough time with the fact that I do not have enough spoons to do all the things I want to do today. It’s been 4 years and I have definitely healed a lot more but learning to navigate this long covid chronic illness is still rough.
Kindness, kindness, kindness
my brothers birthday was also yesterday (23rd) so I'd also like to get him a small treat if possible!!!
Generally, chronically ill and disabled people are so easy to be forgotten and neglected.
#chronicillness
#Disability
Chronic Pain Tip #21: If you are finding yourself frequently in the hospital over night put together a suitcase with a change of clothes, toiletries and an activities book (such as word search, sudoku or pad of paper to draw) in order to make the unexpected trips to the hospital easier. Being prepared helps take the burden and stress off when chronic illness flare ups occur.... https://rons-home.net/en/living-life-lab/tips/living-with-chronic-pain/2025/03/24 #hospital #prepare #chronicillness [Next Tip Mar 31 2025]
“living” with #ChronicIllness and #LongCovid means i’m utterly wiped after cutting and washing my hair today—and my wife was the one doing the cutting and washing, i just had to sit there!
pls spread this to anyone UK-based, esp if they might otherwise believe the oh-so-considerate Department for Work and Pensions' nonsense. https://www.disabilitynewsservice.com/dwp-issues-second-dodgy-press-release-in-attempt-to-trick-media-into-supporting-cuts-to-disability-benefits/
BLOG | A Cruel & Unusual Punishment |
Frightful rhetoric for #PIP & #Disability Benefits whilst also serving as a Cruel & Unusual Punishment to those suffering so much already...
#DisabilityBenefits #FND #Disabled #Autistic #Fibromyalgia #ChronicPain #chronicillness #COVID
https://delphinemusic.wordpress.com/2025/03/24/cruel-and-unusual-punishment/
Can we get one more push on this? I need 210 dollars more for clinic and meds, tomorrow. Emergency.
http://patreon.com/squirrellilly
#MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
In February I joined my annual Make-A-Thing-A-Day group that gathers on FB. I bought supplies and spent the month playing around with Zentangle tiles, neurographic art, and a new set of watercolor magic markers (which are the bomb!). All low energy and very manageable.
With the new meds and the progress I'm making, I hope to make it back to the pottery by summer, but until then, I'm having fun!
#Zentangle #NeurographicArt #lupus #doodling #chronicillness @chronicillness
Please help, we only have until the end of tomorrow to get this money together.
#MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
![as my physical health deteriorates my lols get longer and longer and longer LOLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLL [laughey face emjoi and sobbing emoji]](https://files.mastodon.social/media_attachments/files/114/218/260/975/707/422/original/3f1be06aea108bf9.png "as my physical health deteriorates my lols get longer and longer and longer LOLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLLL [laughey face emjoi and sobbing emoji]")
![When you attempt to talk to someone, but your speech is incoherent
Friend:
[ronald Mcdonald at a mic] pardon my mclanguage but what the deep fried mcfuck was that](https://files.mastodon.social/media_attachments/files/114/217/605/508/299/520/original/41f4120c00518cda.png "When you attempt to talk to someone, but your speech is incoherent
Friend:
[ronald Mcdonald at a mic] pardon my mclanguage but what the deep fried mcfuck was that")
![Me: [waking up]
My Apple Watch: Would you like to record this workout?](https://files.mastodon.social/media_attachments/files/114/217/530/656/412/212/original/8ed9385922d84b36.png "Me: [waking up]
My Apple Watch: Would you like to record this workout?")
